I posed our question about reporting mechanisms for GME to Dr. Sisson. Here is his response (edited a bit by me to delete some discussion about other ...
I know i'm a little late in jumping into the conversation, but i've been out of the country and just got back. Regarding GME and siblings - i've 2 male...
Hi All, I just referenced the group for Dr. Sisson's contact info (easier then digging through my papers). I am so nervous because I'm leaving for 3 weeks...
Have a great trip, Jill! Bali sounds like a wonderful place to visit. I'll be keeping all paws crossed that all goes well while you're gone. Cathy _____ ...
Me too, and I'll cover for you and Frida while you're gone. I'm sure you've given your husband our e-mails so he can reach out to us (I'm referring to me) in...
Hey Jill - Traveling is very very hard when you have a not-well dog at home. I just got back from a 10 day trip to Guatemala with my husband and left my 20...
Thanks Susan, Alex and Cathy! Susan, congratulations on the addition of a baby boy to your family!!! How wonderful! I am trying not to worry about Frida. I am...
Hello all. My 5yr old long hair Dachshund was diagnosed yesterday with GME at the University of Florida Vet Hospital following an mri and spinal tap. I first...
Chris, There is complete hope and those who are telling you there isn't (and what you see elsewhere on the internet) is based on experience that is more than ...
Sorry, omitted the contact information. Here it is: Allen Sisson, D.V.M., M.S., Diplomate ACVIM Neurology/Neurosurgery Angell Animal Medical Center 350 South...
Thank you very much for the paper. I'll give a copy to my vet tonight. My dogs name is Mckenzie. Here's her Dogster page: http://www.dogster.com/dogs/158339...
She's so beautiful. I'm a doxie lady myself. I have two b/t long-hairs; one with GME. Carleigh was diagnosed at 16 months. She has only one lesion and was...
Hi everyone, Our local vet (Missouri City, Tx - outside Houston) is working with Dr. Sisson to setup a protocol for Angel. She has been on prednisone since ...
From: penlynwilson ... Kisa's protocol went like this, starting in November 2006: (1) Prednisone, started high dose and weaned off gradually over six months ...
Penny, The cytosar, the proposed weaning and your fear are all typical and reasonable. Each time you reduce the pred, you'll feel it but dogs can't stay on...
By the way, Cytorar is a pretty safe drug providing it's monitored as Dr. Sisson does. It works for some and for others, it works in combination with the...
Usually Cytosar/Cyterabine is given, in addition to Prednisone, and along with other immunosuppressive drugs all at the same time. A drug cocktail /...
He actually now tries to start with Prednisone, Cyclosporine, Cytosar and Lomustine but may eliminate one or two if a dog's already been experiencing good...
... evening. ... that ... so ... night I ... had ... into ... her ... I'm ... give ... afternoon. ... Chris, I'm sorry you are going through this but there is...
Hi Jan, Nice to hear from you. I don't agree that the shots will prompt some improvement. It's true they control the immune response and they should,...
For what it's worth................ Rem takes his Lomustisine pill once a month. One week prior to his dosing, he starts to deteriorate neurologically. 1-2...
What's Dr. Sisson say about that? I wouldn't think he'd want to allow that mini relapsing (if that's what it really is) to continue because it should be like...
Jan, nothing wrong with what you said. The benefit of the group is that others can step in and comment to clear up anything. Based on Mike's subsequent...
Hi Alex and Jan, I actually had asked this question to Dr. Sisson at one point. When Hunter was first put on the Cytarabine after a couple of the shots I...
Here's how I see it. When a dog is on prednisone, there are no peaks and valleys in condition because it's given several times a day (or at least regularly)...
I'm already seeing improvement. This afternoon, she took up position by the front door in her "I want to hunt lizards" posture. Sure enough, as soon as I...
Below is the text of an email reply to Alex. I thought I had duplicated it but there's a little more in this one. Thank you very much for this paper. I just...
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